Your assist helps us to inform the story
From reproductive rights to local weather change to Massive Tech, The Unbiased is on the bottom when the story is creating. Whether or not it is investigating the financials of Elon Musk’s pro-Trump PAC or producing our newest documentary, ‘The A Phrase’, which shines a light-weight on the American ladies combating for reproductive rights, we all know how necessary it’s to parse out the details from the messaging.
At such a vital second in US historical past, we’d like reporters on the bottom. Your donation permits us to maintain sending journalists to talk to either side of the story.
The Unbiased is trusted by Individuals throughout your complete political spectrum. And in contrast to many different high quality information retailers, we select to not lock Individuals out of our reporting and evaluation with paywalls. We imagine high quality journalism needs to be obtainable to everybody, paid for by those that can afford it.
Your assist makes all of the distinction.
South African TikTok star Beandri Booysen has handed away on the age of 19 after succumbing to Progeria, a illness that causes speedy ageing in kids.
On Wednesday (December 18), her mom, Bea Booysen, confirmed the information in a heartfelt Fb publish titled “In Loving Reminiscence of Beandri Booysen.”
Shared within the “Beandri, Our Inspiration” group, created by the household 15 years in the past, Bea’s message learn: “It’s with deep disappointment that we announce the passing of Beandri Booysen, considered one of South Africa’s most beloved and inspirational younger ladies.”
Bea highlighted Beandri’s impression, writing, “Regardless of the challenges she needed to take care of, Beandri radiated hope and pleasure of life. She was a voice and a logo of consciousness for Progeria and different particular wants, and impressed 1000’s together with her distinctive spirit.”
Bea additionally famous that Beandri was the final surviving individual in South Africa with Progeria, which is often known as Hutchinson-Gilford progeria syndrome (HGPS). She concluded by requesting privateness for the household throughout this troublesome time and promised to share particulars of the memorial service at a later date.
Beandri’s TikTok account, the place she shared heartwarming movies, garnered over 278,000 followers. Her posts typically acquired widespread reward, with followers acknowledging her resilience and optimism.
Following her passing, a tribute video on TikTok amassed over 300,000 views by Thursday, Dec. 19. The caption learn, “WE ALREADY MISS YOU SO MUCH.”
Messages of condolence poured in on social media.
“RIP LITTLE ANGEL WHO MADE A BIG IMPACT,” one commenter wrote.
One other added, “Prayers for the household for the lack of such a valuable little younger woman.”
“So unhappy. What an inspiration she was,” another person commented. “Fly excessive with the angels candy woman.”
Beandri had undergone coronary heart surgical procedure on October 8, as shared by her mom in an earlier Fb replace, thanking followers for his or her prayers and assist. Bea later revealed that Beandri’s coronary heart had stopped, bringing an outpouring of assist from her neighborhood.
As of September 2024, the Progeria Analysis Basis (PRF) has recognized 17 kids residing with HGPS in america, reflecting a median prevalence of about 1 in 20 million.
Youngsters with Progeria usually seem wholesome at start however start to exhibit indicators of speedy ageing throughout the first two years of life. Signs embody development delays, lack of physique fats and hair, aged-looking pores and skin, stiffness of joints, and cardiovascular issues. Mental improvement is often unaffected.
The typical life expectancy for people with Progeria is roughly 14 to fifteen years, with most succumbing to coronary heart illness or stroke. Nonetheless, some people have lived into their early twenties. Latest developments in analysis have led to the event of remedies geared toward managing signs and probably extending lifespan. Notably, the drug lonafarnib has proven promise in slowing illness development, in keeping with the Cleveland Clinic.
Regardless of these developments, there’s presently no remedy for Progeria. Ongoing analysis has targeted on understanding the underlying mechanisms of the illness and creating efficient therapies to enhance the standard of life and longevity for affected people.
#TikTok #star #Beandri #Booysen #dies #uncommon #illness #speedy #ageing
The Unbiased
#TikTok #star #Beandri #Booysen #dies #uncommon #illness #speedy #ageing
Olivia Hebert , 2024-12-19 18:41:00